Sister Study in Lupus
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SisSLE: Sisters of Women with Lupus Research Study
The Feinstein Institute in Manhasset, NY is conducting and actively seeking participants for their new Sister study in Lupus. The SisSLE study will allow researchers to understand why some sisters of lupus patients never develop lupus, and if they do whether there are any factors that precede or prevent the development of disease.
They are looking for blood-related sisters, one sister with a confirmed diagnosis of lupus, age 10-35 and one sister who does not have lupus between the ages of 10 and 35. If there is more than one sister without lupus, all may participate. The sister with lupus will be asked to answer a one-time health survey and provide a one-time blood sample. The sisters who do not have lupus will be asked to answer a health survey twice-a-year and provide a blood sample once a year. The sister`s participation will be for two years, although depending on the results of this study it could be longer. If you choose to take part in the research study you can change your mind about participation at anytime.
Autoimmune diseases often run in families. Close relatives of people with these diseases are at greater risk of developing the same or another autoimmune disease. The SisSLE (Sisters of Women with SLE) study will allow researchers to understand why some sisters of lupus patients never develop lupus, and if they do, whether there are any factors that precede or prevent the development of disease.
To join this study or get more information please call a Research Nurse at 1-877-698-9467.
To find out more on this study, how to apply, study parameters and more please click here.