Recently, lupus has come under special focus at the National Office of Women’s Health and the Office of Minority Health.  National awareness campaigns are underway and more research on lupus is taking place than ever before.   This is a very important time for lupus research and we need your help.  We would like to hear from those who have been diagnosed with lupus and learn more precisely how lupus has impacted their life.

 By participating in the survey, you will help us to:

• Understand individuals living with lupus.

• Create better education and support forums for patients, their families and communities.

• Provide data that will help all of us obtain local and state resources for patient education, awareness and advocacy programs.

The survey is composed of 38 questions and will take approximately 30 minutes or less to complete.  Participation in this survey is completely voluntary and anonymous and participants may withdraw from the study at any time without any negative consequences.  All completed surveys will be analyzed with the assistance of faculty members at Long Island University, C.W. Post Campus, who will be donating their time and expertise.  Further information and instructions can be found in the informed consent form attached to the online survey.

 Findings from this survey will be made available via the Lupus Alliance of America website, newsletters, public service announcements and sponsoring research institutions.   Should any questions or concerns arise, please  call the Lupus Alliance of America at (866)415-8787 or e-mail us at info@lupusalliance.org.

 We thank you in advance for letting us count on you and Count You In!

 Survey link:  http://studentvoice.com/liu/lupusallianceamericasurvey

If you are searching for help on lupus for yourself or someone you love, this site will be a tremendous help to you. Lupus can be a frightening, uncertain disease. Feeling scared and a bit lost is normal when you first hear the diagnosis…but there is more to having this disease than these feelings. The Lupus Alliance of America offers understanding and support, provides information and assists patients to get past “having lupus” and back to living. The Alliance, our affiliates and all of our activities are committed to people with lupus and helping them to address the effects of lupus.

Support and understanding are very important factors to the emotional and physical well being of people with lupus. The Lupus Alliance provides educational tools and training for its affiliates to enhance their patient services, support groups and make them more effective. Support groups are there for you when you need them and also will give you a place to help others. Our commitment is to help people with lupus succeed and survive lupus.

There is a huge amount of information on lupus on the web, in libraries and through your doctors. Don’t be discouraged. Being well educated on lupus is the best tool you can have to address life’s issues. The Alliance will provide and recommend the most proven, current and trusted information on new research, successful and experimental treatments, new and existing lupus organizations, tools for leading a healthy lifestyle and more. This information is presented in a clear and simple way so you can easily locate what’s most important
to you.